The Irish Kidney Association is grateful for your support.
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PATIENT SUPPORT OFFICER: Lorraine Costello
The Patient Support Officer, Lorraine Costello, is based at IKA headquarters, Donor House. The Officer focuses on social gain and welfare issues. The diagnosis of kidney failure brings about significant lifestyle changes on the individual, which impacts on employment and re-training needs. Working closely with the Chief Executive and the counselling service, the Officer oversees the interviewing and assessment of patient needs. In cooperation with statutory agencies, she develops individual and family care plans and liaises with employers, hospital staff, training authorities and educational institutions, in order to maintain or initiate the process of the patient regaining or maintaining independence.
The IKA subvents additional aid to the standard welfare entitlements. Welfare entitlements do not take account of the life-long aspect of the illness, involving long periods of dependency on welfare and reduced levels of employment and extra costs directly associated with the patient’s particular treatment. These costs can include basic needs of travel to and from dialysis centres, visits to medical practitioners, adhering to a prescribed diet level, drugs, medication costs and education grants. The current system of cost recovery, by medical card and tax credits re medical expenses barely addresses the level of costs but, at the least, it admits the recognition of the need which exists but remains an unmet need.
Kidney patients can claim relief, in addition to normal health expenses.
The IKA provides a free, comprehensive and confidential counselling service for those diagnosed with kidney disease, their family members and carers.
The IKA is a national organisation and requests for counselling are received from all over the country. A structure is in place that allows for referral either to the IKA counsellor based at Donor House in West Dublin or if requested and appropriate a referral can be arranged to a counsellor based in the person’s local area. These counsellors are accredited with their professional body.
- The counselling service is open to all those diagnosed with kidney disease, their family and carers.
- Any individual can refer themselves to the counselling service.
- With the person’s permission, nursing, medical or allied professionals, can also refer people for counselling.
- Through the IKA counsellor for those who can attend at Donor House in Parkwest Dublin 12.
- Through a network of nationally registered locally based counsellors
Aoife Smith is a fully accredited humanistic integrative psychotherapist, working in private practice since 2008. She was also a specialist care representative in the healthcare industry for twenty years, during this time gaining invaluable experience working in chronic illness in the form of diabetes, respiratory diseases and oncology. These combined careers have given her a wide range of knowledge both medically and therapeutically allowing her to fully support our patients here at the Irish Kidney Association.
The Irish Kidney Association offers 3 types of holidays:
You can avail of this holiday by filling in an application form these forms are posted to your PD unit / Social worker and your local Irish Kidney Association Branch Secretary in February of every year or you can contact Deborah directly in Donor House on 01 6205306 or email firstname.lastname@example.org
The Irish Kidney Association provides a service for dialysis patients looking to holiday abroad.
Please DO NOT book a holiday or flights before making arrangements for your dialysis treatment abroad.
Your first port of call should be either to contact a member of staff in your dialysis unit or you can contact Deborah directly at Donor House.
The basic information needed to proceed with the booking of a patient’s request is the following:
- Patient’s name
- Holiday location
- Desired dialysis dates
Patients need to give at least a minimum of 4-6 weeks notice for holiday treatments
abroad. The following documentation is required from your dialysis unit in order to confirm
the dialysis sessions:
- Completed medical and dialysis application form
- Up to date blood test results of Hepatitis B, Hepatitis C, MRSA and HIV (the test results must be dated no more than 4 weeks before the departure date)
- A letter from your consultant stating you are fit to travel
- EHIC – European Health Insurance Card formerly known as the E1 11
If travelling outside Europe your EHIC is of no use therefore you must pay for dialysis treatments outside the EHIC card area.