ADPKD Research Priority Setting Partnership Questionnaire

ADPKD Research Priority Setting Partnership Questionnaire

Help identify the top ten most important things to research in ADPKD – autosomal dominant polycystic kidney disease.

The PKD Charity, in association with James Lind Alliance, has collected a range of ideas from patients, carers and healthcare professionals to find those that remain unanswered – such as how to stop cysts growing, how to slow progression, what’s the best diet, how can PKD care be better organised.

Now they want YOU to pick the research ideas that are most important to YOU.

It doesn’t matter if you are a patient directly affected by ADPKD, a family member or carer, or health/social care professional. It should only take a few minutes but your voice will influence ADPKD research for years to come.

Click here to take part in the survey.

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